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Children鈥檚 Liver Disease Foundation is a UK charity dedicated to fighting all childhood liver diseases. We do this by providing emotional support to young people and their families, information to parents and healthcare professionals, funds for research and a voice for all affected.

Our vision is that childhood liver disease will be understood, prevented and treated effectively, ensuring that every child affected achieves their full potential.

Early diagnosis saves lives. Babies who have prolonged jaundice, like Louise鈥檚 daughter, Sophie, whom you hear about in the appeal, must be referred for a blood test to rule out potentially life threatening liver disease. Our campaign helps parents and health professionals spot the vital signs of liver disease in babies.

Photo: Sophie (left) with twin sister Megan.

Being told that your child has a rare and incurable disease is a shocking and upsetting experience, and one which affects the whole family. Our support team are available to families in hospital, over the phone, on social media and at family events. We listen, we understand, we provide clear information and help families to help each other.

Photo: Sophie with her Nan.

Because childhood liver disease is rare, growing up with a liver condition can be an isolating experience. Young people may have to spend long periods away from school, can suffer bullying as a consequence of their illness and are not able to take part in some of the norms of youth culture.

Children鈥檚 Liver Disease Foundation provides young people with exciting new experiences. From building their own shelters to tackling a high ropes course or making a film telling their own story, our events for young people build confidence, teach new skills and help develop vital peer support. Our young people emerge with new friends knowing that their liver disease does not define them.