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The Sickle Cell Society is a national charity for sickle cell disorder, an inherited blood disease. The charity provides information, advice and support to those affected, from a helpline service to an annual children鈥檚 residential respite holiday, as well as educating the public.

Children with sickle cell disease need to learn about managing their condition from a young age. The Sickle Cell Society brings children together and teaches them about their health so they feel better able to look after themselves.

The Sickle Cell Society holds events which give patients an opportunity to make their voices heard and share their own stories with the community.

Malorie Blackman has a keen interest in raising awareness of sickle cell, and wrote this book about the issues children with sickle cell face.

Children with sickle cell disease need a little bit of fun in their lives but have special needs. Each year, the Sickle Cell Society runs a tailored holiday where volunteer carers and medics take children on a residential trip with activities including art, sports and theme parks!