Cardiac Risk in the Young
Singer Pixie Lott presents an appeal on behalf of Cardiac Risk in the Young, a charity devoted to supporting families following a cardiac bereavement.
Singer Pixie Lott presents an appeal on behalf of Cardiac Risk in the Young (CRY), a charity devoted to supporting families following a sudden cardiac bereavement, and working with the best medics and researchers in the world to prevent such deaths wherever possible. It's a cause close to Pixie's heart as her childhood dance teacher Matt Beadle died following a cardiac arrest.
The film also features the story of Adam Donnelly, a close friend of Pixie's sister, who died suddenly when he was 17. Adam's mother and sister talk about how CRY came to their aid in the wake of his death, and how the charity helped provide an answer to why they lost Adam so unexpectedly. CRY screened the rest of the family for heart conditions, and discovered that Adam's sister Sian also had an inherited heart condition.
CRY's ambition is for every young person to be screened for life-threatening heart conditions, so that as many as possible of the 600 young people who die each year of sudden cardiac problems can be saved.
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Pixie Lott's Lifeline Appeal for Cardiac Risk in the Young
Duration: 09:01
Donate to this month's Appeal
To find out more about CRY please go to:
Or write to:
Unit 1140B, The Axis Centre,
Cleeve Road, Leatherhead,
Surrey KT22 7RD
Or call: 01737 363222
Pixie Lott
I always knew I wanted to be on stage. But I couldn’t have done it without certain special people who believed in me and showed the way. One of those people was Matt Beadle. He was my dance teacher when I was at stage school.
He had a successful career in West End Musicals and was someone I really looked up to. He was always there to help if you had a problem, but mostly I remember his massive smile. As a dancer Matt was incredibly fit, and seemed to be in perfect health. So when I got a call to say he’d dropped dead from a heart attack, I was in shock. I thought ‘how could this happen’? I just couldn’t believe something like this could happen to someone so young.
But the really shocking thing is just how many apparently healthy young people die from a sudden cardiac arrest each year. It could happen to someone you know, out of the blue. Like my big sister’s friend Adam Donnelly. I remember the impact that Adam’s death had on my sister and I still can’t quite believe that 12 young people each week die of undiagnosed heart conditions and that’s why I support Cardiac Risk in the Young, or CRY. It’s the only charity devoted exclusively to supporting families following a sudden cardiac bereavement, and working with the best medics and researchers in the world, to prevent such deaths wherever possible.
Last year 23,000 young people were screened by CRY. It’s a completely free service that no one else offers. And the vital research they fund continues to save lives every day. But CRY relies completely on the generosity of its supporters to fund its work, and CRY’s ambition is for every young person to have the chance to be tested, to prevent more tragic deaths, like Adam’s or my teacher Matt. This will only be possible with your help. So please give what you can today.
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Cardiac Risk in the Young
For 20 years CRY has been preventing young sudden cardiac deaths through awareness, screening and research and supporting those families affected. Every week in the UK at least 12 young people die suddenly of undiagnosed heart conditions. These tragedies have a devastating impact on the family and local community.
One of CRY’s most important aims is to try to reduce suffering after a young sudden cardiac death. We do this through our bereavement support programme and specialist clinical support services.
The CRY Centre for Cardiac Pathology has helped over 1,500 families understand the cause of death, informing clinicians what to test other family members for. At the centre, Professor Mary Sheppard is able to provide the family with vital answers to the cause of death within 2 weeks. In the past it could take up to 2 years.
The CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology lead by Professor Sanjay Sharma enables families to be tested soon after their GP referral -usually within a few weeks.Ìý The family will be seen together and have all tests on the same day.Ìý They will leave the clinic with a better understanding of the cause of death, whether other family members are at risk and how to prevent further tragedies in the family.
It is essential that everyone knows the signs and symptoms of cardiac conditions. However, the vast majority of tragedies occur with no symptoms and that is why screening is so important. Since CRY was founded in 1995 CRY has tested over 100,000 young people, resulting in 100s of potentially life threatening conditions being identified. The screening programme is growing each year and last year over 23,000 young people were tested. Anyone between the age of 14 and 35 can book an appointment online and, in 3 clicks, can register to have a free cardiac investigation overseen by a specialist. As CRY receives no government funding this is only possible because of the incredible support CRY receives from communities throughout the UK to provide this free service to the public.
But CRY’s screening service is not just about testing young people, treating those affected and supporting them after a diagnosis (through the myheart network). There are still many questions and CRY’s screening programme and specialist services enable essential research. This applied research is informing clinical practice and policy throughout the world.
Over the past two decades CRY have transformed the way in which families are treated after a young sudden cardiac death. Your donation to CRY will not only help us to continue offering specialist support to families when there is the greatest need, but it will also help us to test more young people and work towards a day when all young people will have the  opportunity to be tested.
Thank you.Ìý
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Donnelly Family
Adam was really active. He swam, played football, played rugby. He was just a typical healthy fit teenager.
When Adam was 17, the family went on holiday to Cyprus with friends. One day everyone went to the beach, while Adam decided to stay behind to swim in the hotel pool.
They were snorkelling and saw a friend running down and he said that there’d been an accident.
Adam was found floating in the pool. He was rushed to hospital, but his heart had stopped and doctors couldn’t revive him.
The family couldn’t believe a 17 year old could die of a cardiac arrest with no warning and still can’t quite believe that 12 young people each week die of undiagnosed heart conditions. When someone dies young, it’s always completely devastating to everyone around them.
CRY is the only charity devoted exclusively to supporting families following a sudden cardiac bereavement, and working with the best medics and researchers in the world, to prevent such deaths wherever possible.
Adam’s family found it hard to grieve without a real understanding of why they had lost him so unexpectedly. His mother turned to C-R-Y for help. It suggested testing the rest of the family for heart problems at its specialist clinic.
The results were revealing. Julie was diagnosed with an inherited condition called Brugada Syndrome which can trigger cardiac arrest.Ìý
Tests confirmed that his sister Sian also had Brugada syndrome. But the good news was that doctors could offer her a treatment - an operation to fit a device called an ICD to regulate her heart and prevent a cardiac arrest.
Sian’s heart condition was picked up because of the tragic death of her brother. But CRY’s focus is to identify life threatening heart conditions before anyone dies.
The reason why there are over 600 sudden deaths each year is because young people who are fit and well, are not routinely tested for heart conditions. So CRY believe that a screening programme for everyone is the best way to save lives.Ìý
James Bailey
James Bailey was screened for heart conditions one day. One after one came out and everyone was fine and then it was his turn, he had the test and they broke the news to him that there was something wrong.
The doctor told James that he had Wolff-Parkinson-White syndrome, a potentially lethal heart condition, and he’d have to stop playing sport immediately.
It’s extremely scary as a seventeen year old who had no idea that he had this problem, suddenly faced with death.
James had further screening and was approved for an operation that held out the promise of a complete cure.
So after the operation, he was back on the football field playing again like nothing had ever been wrong.
He says: “To be free again and not have any of these worries, just go back to a normal life, put all this behind me was fantastic and that was all thanks to being diagnosed. So obviously I owe my life to CRY.â€
This again shows the importance that screening everyone can make. This is CRY's goal. It really saves lives.
Credits
Role | Contributor |
---|---|
Presenter | Pixie Lott |
Executive Producer | Ruth Shurman |
Series Producer | Alex Steinitz |
Broadcasts
- Sun 21 Feb 2016 13:50
- Wed 24 Feb 2016 13:00