New kidsβ toys launched to help people with hidden disabilities
Toy figures wearing lanyards could help children understand hidden disabilities.
A miniature, toy version has been launched of a scheme to help people inform others they have a hidden disability.
The hidden disabilities sunflower lanyard scheme has been running for eight years.
The idea is to use the lanyards to inform the public that anybody wearing one might need extra help.
Emma meets Paul White, who founded the scheme.
She gets a demonstration of the new Lego figures from 14-year-old Jayden, who has a heart condition known as long QT Syndrome, and her mum, Tasha, who has three other children who also have hidden disabilities.
Also on the show - to mark Disability History Month, we hear from historian Professor David Turner
Presenter: Emma Tracey
Producers: Daniel Gordon, Alex Collins
Sound recording and mixing: Dave O'Neill
Editor: Farhana Haider
Transcript
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3rd December 2024
bbc.co.uk/accessall
Access All β episode 136
Presented by Emma Tracey
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EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs December, the year is drawing to a close, and here on Access All weβve been looking back at the past 12 months, and what a time itβs been. And hereβs a little reminder of some of our highlights:
[Clips]
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I am so delighted to have two VIPs in the Access All studio today. James Owen and his legendary football dad, Michael Owen.
MICHAEL-ΜύΜύΜύΜύΜύΜύΜύΜύ Itβs very difficult. You want to take all the pain away. You want to swap with him. If I could give him my eyes and weβd do a swap then I would tomorrow of course.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Recently I got the opportunity to visit the MI5 headquarters.
LIAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I actually became a senior manager in MI5 after I had been diagnosed as autistic. So, from my own experience my biggest significant career developments happened after I worked out I was neurodiverse.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ As part of our General Election coverage weβve been putting your questions and concerns and weβve been exploring their policies around disability and mental health. Mims Davies, thank you for joining me.
MIMS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Angela Rayner.
ANGELA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you, itβs great to be here.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ed Davey, Thank you for joining me.
ED-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Liz Saville Roberts from Plaid Cymru.
LIZ-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs great to be invited to join you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Mags Lewis from the Green Party, thank you for joining me.
MAGS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Pleasure.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Marion Fellows from the Scottish National Party.
MARION-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you for having me.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Welcome to the Access All podcast at the Edinburgh Festival! Political comedian, Matt Forde [cheers and applause]. Iβm sure Trump would have some interesting things to say about disability.
MATT-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, itβs totally made up, by the way. Disability is not a scientific thing. Emma, I think what youβre doing is so sad. [Laughter and applause].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs Adam Hills! [Cheers and applause]
ADAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think when youβve got a disability it sometimes forces you to either become more positive or more negative. I like to think Iβve gone more positive with my, you know, disability. I like to think my shoes are half full.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Bonjour, Γ§a va? I am here in Paris for the 17th Summer Paralympic Games, and I cannot tell you how excited I am. [Cheers] weβve just come out of the swimming at La DΓ©fense Arena, and honestly what a buzz. And it was so exciting and so thrilling to see Callie-Ann Warrington and Faye Rogers get their medals.
[End of clips]
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That is just a little sample of all the things we got up to this year on Access All. What a year! What a year itβs been! But we want to know what your disability moment has been from 2024. Was it the Paralympics, as you heard there? Was it our little visit to Edinburgh? Probably not. Was it something that happened in your life? Tell us, get in touch with us in all the usual ways. You can email accessall@bbc.co.uk. You can find us on the socials, X and Instagram @ΒιΆΉΤΌΕΔAccessAll. Or you could send us a WhatsApp message, either a voice or a text. Pop the word Access at the beginning of it, which helps us to find your message, and send it to 0330 123 9480. On with the show!
MUSIC-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Theme music.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello, Iβm Emma Tracey, and this is Access All, the podcast that celebrates disabled people. And the whole word is celebrating disabled people this week as we mark International Day of People with Disabilities. Yay! What better way to do that than to go back into history. Itβs Disability History Month and Iβm going to be talking to a historian a little bit later on. The theme this year is disability and employment, and Iβll be finding about how disabled people got on in the workplace down through the centuries. But first, I get to play with some toys. And they call this work?
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ As gift buying ramps up for Christmas β it really is ramping up; I have been in town recently and itβs absolute bedlam β so in preparation for that Lego have launched some toys which have the sunflower lanyard. Now, this is a brightly coloured lanyard which is designed to alert people who need to know that the person wearing it has a hidden disability and might need some extra time or space or a different adjustment. So, it's kind of helping hidden disabilities be more visible to people who need to know about them. Jayden and her mum, Tasha, are here with me in the studio. Now, Jayden has long QT wave syndrome, a life-threatening heart condition with no visible signs. But first, letβs hear from Paul White, whoβs the CEO of Hidden Disabilities Sunflower Lanyard, the organisation which introduced and operates the lanyard. Paul, thank you for joining me on Access All.
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm very pleased to be here, Emma. Nice to speak to you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Paul, I explained a little bit about what the sunflower lanyard is, but what would you say it is?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, the sunflower is a simple tool for somebody to wear to demonstrate they have a non-visible condition. And itβs a choice; people choose to wear the sunflower to show that they have a condition that isnβt immediately obvious. And it enables others to give that person that extra bit of time, care, patience, understanding, or maybe simple kindness that they need just to get through their day.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I mean, it feels like something that might be able to be picked up by anybody and could potentially be abused. People maybe who donβt need to wear it, wear it so that they can maybe jump a queue?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, we donβt have to ask for proof of person, and thatβs really because of the number of people who havenβt got a diagnosis or a diagnosis just isnβt available, so something like anxiety for instance. But what the sunflower does is it provides the person the ability to identify that they have a condition that isnβt obvious. And it doesnβt give you the ability to jump a queue, as you say, or anything else; it just gives you the ability to demonstrate that fact. And it gives others the ability to be able to see that there is something going on that isnβt immediately obvious.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sure. So, what kinds of businesses sign up to carry these sunflower lanyards?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Any business where the customers are visiting is initially where the sunflower was very successful. It was started in Gatwick Airport in 2016 when they recognised that they could see people with a visible disability, but what about all these people whose disabilities werenβt visible. And obviously you only go to an airport for one reason, and it quickly grew from airport to airport, and then people naturally travelled further afield from that airport. So, all types of businesses and organisations now support the sunflower, whether that be in retail or that be in leisure or that be in travel. The sunflower really has got a presence. There are over 400,000 businesses across the globe now that provide or support the sunflower. We are now recognised in 80 countries.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ How many lanyards are in circulation?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, to date we have provided over 4 million lanyards.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Wow. I mean, thatβs eight years on, itβs not very long. Itβs a newish thing. So, a symbol you had made changed peopleβs lives. That must be an incredible feeling. What kinds of stories do people tell you?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ One story that always resonates with me is I had an email from a gentleman who used to play walking football with his mates down at the local sports club. And he had dementia, and his wife used to drive him to the sports club. And the bus company recognised and supported the sunflower, and because of that he was able to get the bus on his own. And he messaged me to say that for the first time since he was diagnosed with dementia he finally had something that he could do independently. And that really affected me as a person and I thought, you know what, this has got more than me just creating and selling lanyards; this has got an opportunity to really do something for society.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, Iβve got two lovely people in front of me wearing the sunflower lanyard. Weβve got Jayden and Jaydenβs mum, Tasha. Jayden, tell me about the condition that you have which means that the sunflower is useful?
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, the condition I have is long QT syndrome. It can cause things like arrhythmias and it can cause cardiac arrest, it can also cause fainting, seizures, and also sudden cardiac death.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And what symptoms do you have, Jayden?
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sometimes I get palpitations, sometimes I get out of breath, and sometimes I feel dizzy from it because it can be triggered by loud noises or exercise and just things like that, or even emotional stress as well.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That sounds like stuff that might happen to you when youβre at school, Jayden.
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Definitely.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Do you wear the lanyard at school? And if so how does it help you there?
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I do because itβs just nice to show people that I have a disability without actually having to say it as well. But I feel like it needs to have a bit more recognition in schools because Iβve had lots of people come and say, oh whatβs this, why are you wearing that, not knowing what itβs actually for. It has a lot of recognition in supermarkets and other places, but I feel like schools there should be more assemblies surrounding it just to know that oh, this person has it so you need to be aware of it in case something happens.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Tasha, youβre Jaydenβs mum, youβre disabled yourself and you have four children who have hidden disabilities. How does the lanyard get used in your house?
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, we mainly use it when weβre going out and about, mainly in the supermarkets or if weβre going on holidays, especially for my youngest one whoβs four years old, sheβs also autistic. We didnβt use it when she was much younger, like say for instance she was two, three; we only started using it when she turned four. Sheβs now turned five a few weeks ago. But obviously in the supermarket itβs very noisy, itβs very loud, thereβs lots of different smells, the temperature changes, itβs cold, itβs hot. So, she would have tantrums and meltdowns and people would look at us and give us looks, like, you know, in disgrace, like what a naughty child, just tutting.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And actually do people recognise the lanyard enough now to leave you alone or to help when they see?
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I would say that now in the supermarkets, sheβs wearing it now, we have had a few people who work. For instance in a supermarket, in a Sainsburyβs I can say there was an incident, a time where she was kicking off about something, she was feeling really overwhelmed, and a lady came over, she recognised she was wearing the lanyard and said, βDo you want to come and have a look at what weβve got on the shelves over here?β So it was a distraction technique she used because she recognised that she had that. But I feel as though if she didnβt have that she may have just looked at her and just thought, goodness me, as it was before. But since wearing the sunflower lanyard in supermarkets itβs made life a little bit easier for all of us.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Does it make you a little bit more relaxed going out?
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Definitely relaxed more going out. Definitely for myself as well in the supermarkets because immediately I will get assistance, somebody will say, βWould you like some help to pack your bags? Is there anything that we can do for you or to get for you?β And obviously when I donβt wear it I donβt get that help.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Right. And you have a self-help group, Tasha, how were you inspired to set this up? What happened?
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, Iβve always struggled with my I would say hidden disabilities for years. I felt like an imposter or a fraudster because on the outside I looked perfectly well. And I think that thereβs a lot of misconception around what a disability should look like. If youβre not in a wheelchair or you donβt have a frame or you donβt have a walking stick then youβre deemed as youβre absolutely fine. And I wanted to do something about that. Iβve been challenged, Iβve lost count of how many times Iβve been challenged for parking in a Blue Badge designated space.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Right. So, you just wanted to raise more awareness so people wouldnβt challenge you?
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ To raise awareness, that was the initial goal. But itβs grown into something huge now and itβs beautiful, and itβs become a beacon of hope for a number of individuals with disabilities.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, thereβs these toys here and theyβre from Lego and they have the sunflower lanyard. Can we have a look at those?
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sure.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Will you show me them? Shall I crawl over to you here? Oh, I remember Duplo from when my kids were little, okay. And does it have a lanyard on just now?
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, itβs like a printed lanyard on the front.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ On the front.
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ His name is Ryan. Heβs wearing ear defenders.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Letβs have a feel.
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ He has a suitcase in his hand; heβs clearly going abroad. Heβs got red shorts and a green t-shirt and wearing a hidden disability sunflower.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I bet your four year-old likes to play with this? I remember Duplo from when my ones were little.
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ When she saw this immediately, sheβs normally monotone, but yesterday it was like, βThat looks just like me, mummy, because heβs got ear defenders and theyβre blue like mine. And look, heβs wearing the lanyardβ. So, she felt like Iβm not the only one, and itβs okay to have ear defenders and also wear the lanyard.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I mean, for goodness sake, why are there not more toys like this?
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I know.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ This is 2024. Now, going back to you, Paul, youβve been listening to all of this. You were involved in the process of creating all these toys, werenβt you. What was that process like?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It was very exciting actually. The way that Ryan, for instance, is in an environment where he would need ear defenders being in an airport, because to me it says that Ryan has some kind of sensory issue and he needs to reduce the sound, and the fact that heβs wearing a sunflower. And really, again for me, itβs how that will hopefully evoke a conversation between parents and children and children and parents as to what the sunflower means. And that can only be a good thing for sunflower wearers in general.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Paul, how can people get a sunflower lanyard if they need one?
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ If they go onto our site, which is hdsunflower.com youβll see a map, and that map shows all of the locations you can pick one up for free.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Paul White, from Hidden Disabilities Sunflower Lanyard, and lovely Tasha and Jayden, thank you very much for being here on Access All to talk about toys because itβs made my day.
JAYDEN-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you so much for having us.
TASHA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you so much.
PAUL-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thanks for having us.
MUSIC-
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It is Disability History Month in the UK at the moment, and this yearβs theme is employment and livelihood. So, what better time to take a deep dive into the subject of disabled people and work throughout the centuries. And what better man to do it with than Professor David Turner. He is an expert in disability history from Swansea University. Hi, David.
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello, itβs great to be here.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ David, Disability History Month has been going on for quite a few years; why does it exist and why should we mark it?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, yeah, it was founded at the beginning of the last decade as a way of raising peopleβs awareness of disability more generally, and of the really rich and interesting histories that disabled people have had over the years. Itβs just really important to have a focus on disability, particularly around the International Day of Disabled Persons on 3rd December, and to think about different themes affecting disabled peopleβs lives. So, thereβs a different theme for Disability History Month each year, and this year itβs about employment and livelihood.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Okay. And every time I research disability history, David Turner, your name pops up. And I just wondered what inspired you to focus on disabled peopleβs histories. Whatβs your connection with it?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ A couple of things got me into it. One is that Iβve always been a social historian, so Iβm always interested in stories of people who we havenβt heard of before and the fascinating lives that ordinary people have led in the past. And as I was researching I found that disabled peopleβs voices were absent from mainstream history, so I really wanted to bring disabled people back into the picture.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And what time periods and what sort of people have you tended to focus on in your work?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, it covers quite a lot actually. My work I suppose starts back in the 17th century with the first welfare laws which were brought in in Britain at the beginning of the 17th century, the 1601 Poor Law.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, thatβs like benefits?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs benefits, yeah. Thatβs the first sort of national system of welfare which provides some support, some limited support for people with a range of impairments. So, it starts there and it goes pretty much up to the present day.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Okay. So, letβs stick with the benefits for aΜύ minute. What did they look like in the 1600s and what kinds of disabled people did they serve? And then how did they develop and change over the years?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ The benefits really were aimed at people who were defined, not as disabled because that word wasnβt used very widely outside of the context of the military at that time, but it was to help people who were defined as impotent. And this is a very broad term covering a whole range of impairments. But to be defined as impotent meant that you werenβt able to support yourself through your own work, or at least not being able to live through your own labour. So, the first system of welfare was based on trying to provide some support for those people who lacked other forms of assistance. It wasnβt particularly generous, and there were all kinds of moral criteria for determining who was eligible to get support.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ooh, like what?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, you had to be of good moral character. So, unlike the benefits system today which is based on measuring incapacity, in the past it was much more about your honesty, your reliability, your good Christian conduct which was seen as important factors in determining whether you could get support.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Tell me, what kind of work did disabled people do over the years?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ All kinds really. Iβve found disabled people doing some kinds of work which you might find surprising. So, recently Iβve done some research on disability in the coal industry in the age of the Industrial Revolution, and I was really surprised to find people with missing limbs working underground in coal mines in the early 19th century. There was this expectation that people would go back to work after accidents, of which there were very many in those kinds of environments.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And were they not worried about the risk to other people and the risk to those people with the missing limbs?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That becomes an increasing issue as time goes on because by the end of the 19th century youβve got workmenβs compensation laws, which makes an employer liable for any accident in the workplace. At which point they become very concerned about any disabled person working for them who might be a risk to themselves and to other people because they might have to pay out these compensation claims. But earlier on thereβs much less of that; the risk was taken on by individuals. And actually in some cases disabled workers might have been valued in those kinds of dangerous roles because theyβd had experience of accidents. So, youβd find some disabled miners working as supervisors providing safety advice to other workers, perhaps itβs because of their own experience of surviving an accident that gave them greater authority to speak out about those kinds of issues.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs really interesting actually. What about the disabled people telling the stories of other disabled people? James Wilson seems like an interesting character.
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Heβs an incredibly interesting character. So, he lost his sight as a young child due to smallpox, like many people did at that time. But he went on to have various careers. He wrote the very first disability history, which came out in 1821, itβs called Biography of the Blind. So, he talks about the great and the good, so there are famous writers and scientists and musicians.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Whatβs changed in terms of how disabled people are viewed and how life is for disabled people in terms of better or worse in the last 200, 300 years, David, do you think from your perspective looking at it from a historical perspective?
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs such a huge question, isnβt it? In many ways things have got better. Weβve got much more positive representation I think in the media today. Disability rights are now enshrined in law, albeit imperfectly. And technology and medical science is enabling people to live longer and more fulfilling lives. All these things are improvements. But I think we need to be wary about seeing history as just a march of progress from a time when everything was terrible for disabled people to an age where everything is great, because clearly we know thatβs not the case today. And also when we look at the past actually we find disabled people living rich and fulfilling and interesting lives. So, I think itβs really important to tell those stories. Itβs such a clichΓ© I think to say that people in the past didnβt understand disabled people or didnβt understand disability, therefore they feared it. Which they did and people do today, but at the same time disability was just a part of everybodyβs lives. I read a medical report from the early 1830s about people living in Leeds which estimated that only 10% of the population enjoyed full health; so 90% of the population is sick or disabled in some way. But I think it shows you that disability was really prevalent in the past and people would have understood it, people would have expected it to be part of their own lives and their familiesβ lives and would have found ways of living with it.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Professor David Turner from Swansea University, thank you very much for joining me on Access All and giving me a bit of a history lesson this Disability History Month.
DAVID-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That is it for this episode of Access All. Thank you to my guests and thank you for listening. Please, if you like what you hear, hit that big subscribe button on ΒιΆΉΤΌΕΔ Sounds, and you will get Access All onto your device every week without doing one thing. Thanks for listening. See you soon. Bye.
[Trailer for Newscast]
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You know when youβre worried about something, but then you talk to your friend who knows more about the subject than you do, and straightaway you start to feel better? Thatβs what we try and do every day on Newscast.
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now, theyβre saying that that would be simple to do, it would give everyone certainty.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We talk to people who are in the news:
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You were chasing me round with a plate of cheese.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We talk to people who know whatβs going on in the news:
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ At least I didnβt get up and slap anybody.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We talk to people who understand what the news means:
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think that heβs decided heβs going to listen, and then he might just intervene.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And we talk to the best ΒιΆΉΤΌΕΔ journalists, asking the most important questions:
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Whatβs wrong with chinos? You donβt want them, people to start wearing chinos?
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Donβt start me, Chris.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs Newscast from ΒιΆΉΤΌΕΔ News, the podcast that knows a lot of people who know a lot about the news.
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And I was like, go on Kate, put some more welly into it!
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Listen to Newscast every weekday on ΒιΆΉΤΌΕΔ Sounds.
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm glad I asked that.
FEMALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm very glad that you asked that!
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