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How does it feel to have your genes edited?

Jimi Olaghere’s life was overshadowed by his sickle cell anaemia with flare ups leaving him in great pain and needing hospital treatment. He heard about a pioneering medical trial for people with sickle-cell and leaped at the opportunity to join it. Having undergone a very involved process to harvest stem cells and then chemotherapy to prepare his body to receive the edited stem cells, Jimi was then infused with his own, now edited stem cells. Jimi is now able to produce healthy blood cells that aren’t sickle shaped and whilst he still has low-level symptoms his life has changed dramatically since the treatment. He tells CrowdScience’s Caroline Steel how he feels and what his hopes are for the millions of others around the world who have sickle cell.

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1 minute