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I'm Alice and I have Tourette's

Alice Franklin is one of 300,000 people in the UK with Tourette’s syndrome. But a survey by the charity Tourettes Action shows most struggle to access medication and therapies.

Alice Franklin is one of 300,000 people in the UK with Tourette’s syndrome.

For 25-year-old Alice, the condition manifests itself in uncontrollable body movements or ‘tics’ – jerking, twitching, punching walls and windows and involuntarily collapsing to the floor.

She says the physical side of the condition is the hardest to deal with and exhausting, but she also swears and hurls impromptu insults at individuals she’s just met – including her new boss and customers in a bar where she worked.

It’s a life-changing condition Alice has lived with for more than three years – but for her and thousands like her, therapy isn’t readily available.

In fact, a survey shared exclusively with 5 Live Investigates by the charity Tourettes Action shows even when a diagnosis has eventually been made, most people aren’t given medication or directed to any form of behavioural therapy.

And even when they are, it can take years to access.

This clip is from 5 Live Investigates on Sunday 20 January 2018.

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