麻豆约拍

Andy and Lisa Hover live near Ashley Heath and have four children. 11 year old Annabelle and Robbie, who's four, have recently been diagnosed with Juvenile Batten Disease. It's a genetic condition which means they'll go blind, lose memory and mobility and have much shorter lives. Andy, Lisa and Annabelle speak to reporter Abby Newbery about the condition and how it's impacted on their family.