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Claire says of her son: "Finley is nearly two years old. He was born on the 7th February 2006 and at around four months old I began to have concerns about his development and began to talk to the health visitors. By the time he was due to have his seventh month check-up I took him to see his GP and he was referred to see a Consultant Paediatric Neurologist in October 2006.

We came away after having seen him with our concerns confirmed.Μύ At the moment, all the specialists are not sure what's wrong with Finley butΜύ they think he has a form of rare brain and central nervous system disorder.

Finley has Hypotonia which means his muscles and his ligaments are very weak, his joints actually come out and go back in again although this doesn't hurt him.

He also has Microcephaly which means a small head and brain because his brain is not developing properly. As well as thi,s he has severe Global Development Delay and growth problems including Scrotal Hypoplasia (testes not developing) and reflux disease.Μύ Finley has a gastrostomy as he does not eat very well, so this enables us to tube-feed him straight into his tummy and ensure he is getting enough nutrients and calories

My picture of Finley is of a very happy boy full of smiles and is very ticklish he has a gorgeous giggle that just makes me melt."

Claire say that looking after him is a full time job for her and the family but she has a network of support people who are also helping with Finley's care and development.

She says: "He has a Portage nurse every two weeks, Surestart play sessions every two weeks, physio twice a week, speech and language therapy every month and occupational therepy every two weeks. He is under about 15 different doctors, consultants and specialists. Finley also attends the Leapfrog Nursery in Brough in East Yorkshire and the staff have been fantastic.

We have a key worker called Jane from Kids charity who looks after all of us.Μύ Everyone has been amazing and we are so grateful for the love and attention Finley gets from everyone involved in his care.

We are raising funds to enable us to provide Finley with specialist equipment, aids and toys and also to keep him on The Brainwave Programme which he enrolled on in October of 2007.

We are already seeing changes in his strength for the better and even though these changes are small, it is still progress in the right direction.Μύ We spend 40 minutes everyday with Finley doing his programme.Μύ We would like to take Finley to Great Ormond Street Children's Hospital next year to see if we can get any more answers or any ideas about his prognosis, not knowing is very difficult.

We also want to send Finley to swim with wild dolphins with a charity called Operation Sunshine which research has shown has great benefits for children with brain injuries and disorders."

In her interview Claire talks about Finley's eight years old sister Lauryn who adores Finlay and is very supportive of her little brother.