ΒιΆΉΤΌΕΔ

Huntington's Disease Association

Lifeline Appeal 28th April 2024

 Charlotte is pictured with her mum Elaine, who both appeared in the Lifeline appeal

HD Youth Voice has had a huge impact and helps me feel less alone, which means I can combat everyday life with Huntington's disease head on”
β€” Charlotte, supported by our Youth Engagement Service

Thank you to everyone who donated to our appeal. We were delighted the appeal has raised Β£39,504. The money raised will continue to ensure we can support anyone affected by Huntington's disease. People like Charlotte and her mum, who were featured in the ΒιΆΉΤΌΕΔ Lifeline appeal. Charlotte talks about the invaluable support she and her family have received. The charity’s Youth Engagement Service has supported Charlotte, and her mum, Elaine, is grateful for this.

β€œThe biggest thing for Mum is knowing that Hannah (my sister) and I aren’t alone anymore and that we don’t have to go through things alone.”

Charlotte, who is gene positive, meaning she will go on to develop the disease, is an active ambassador for the Huntington’s Disease Association, she was part of a group called HD Youth Voice that created a film to help other young people affected by Huntington’s. Work like this can continue with the help of the money raised in this appeal.

Charlotte said of her experiences being part of HD Youth Voice,

β€œHD Youth Voice has had a huge impact and helps me feel less alone, which means I can combat everyday life with Huntington's disease head on.”

The money raised will go towards ensuring that all our services are available for anyone affected by Huntington’s disease, whether that is our Specialist Advisors, youth service, events, webinars, education of Health and social care professionals, or general support in the community.

Your support of the ΒιΆΉΤΌΕΔ Lifeline appeal means a great deal. Together, we will build a better life for those affected by Huntington’s disease.

For more information please click

 

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