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I've been interviewing Robert Meadowcroft, who's director of policy for the Muscular Dystrophy Society. Afterwards he said "I'm Mr Angry today" and as I read back some of his comments, I can't disagree with his description.

"The problem lies," he said, "in a lack of health planning in Wales. There's a crisis in care for patients with muscular dystrophy."

And he went on: "Services are getting worse in Wales for people with muscular dystrophy. Not staying the same, not getting better - they are getting worse."

Strong words. So what's he so angry about?

Well it's the case of Jack Thomas, a fourteen year old from Cardiff. He has a condition Duchenne Muscular Dystrohy and needs regular sleep studies. Unfortunately for him, his local hospital - Cardiff's UHW - has stopped its service and for him to continue this vital assesment he has to travel to Great Ormond Street in London. You may have heard his mum Joanne on this morning's Good Morning Wales.

Robert Meadowcroft and his colleagues, plus another parent are meeting the health minister Edwina Hart and officials in the Assembly tomorrow. They'll have strong words for them too. This is what they want:

• The sleep service in Cardiff re-instated immediately.
• A commitment to appoint care advisers - at least one for the North and one for the South.
• And a review of neuromuscular services.

Robert Meadowcroft says the last point is the most important. "Services in Wales," he told me "are getting worse not better. There's been a serious decline which is predicted to continue for the next two years at least."

So tomorrow's meeting should be interesting. Edwina Hart has told the society that she wasn't aware of the seriousness of the situation. They met four weeks ago and tomorrow's meeting is the follow-up. I'll keep you updated.

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